Our aim is to improve the social skills and relationships of young women with Turner Syndrome.
Much of the current research in Turner Syndrome is focused on physical health. Our aim is to find out more about the wellbeing and behaviour of girls and women with Turner Syndrome. We’re especially interested in social skills, friendships and relationships, as we know that some young women experience difficulties in these areas.
Having good social skills is important for helping us form friendships, relationships and to communicate with each other. Some people may find social situations difficult, because they can’t accurately read
people’s body language, emotions or facial expressions. This study aims to understand how young women with Turner Syndrome recognise emotions and facial expressions.
Taking part in the FACE Study involves completing an online quiz from the comfort of your own home. All the information you provide us with will be collected and stored in accordance with the Data Protection Act 1998.
The study is based in the UK, but we’re inviting families from across the world to take part.
Families that have recently received a diagnosis of Turner Syndrome often want to know what to expect as their child grows up. Collecting information about the behaviour, development and wellbeing of lots of people will help us understand Turner Syndrome better. The SOAR Study was comprised of a mental health survey, interviews abut social ability and a social skills pilot group.
The SOAR is now closed. Please check back for results on the website soon.